I’m writing this, while sitting in our new 22ft. camper. We’re all setup at Casa Blanca International/State Park in Laredo TX. How we got here is another tale for another day.
Haven’t blogged in a while. Once my daily radiation therapy ended, I didn’t much feel like it to be honest with you. But the other night I was watching Grey’s Anatomy. One of the characters is going thru therapy for a cancerous brain tumor. She portrayed the vulnerability one feels so well, all the emotions I felt over the last few months came flooding back. I even found myself crying. So here goes my radiation therapy story.
The first thing my Radiation Oncologist tells me is there are much fewer side effects during radiation then there is with chemo. Something I was glad to hear. Then he goes on to explain what side effects there are and all the steps associated with the setup process and daily treatments. As with most things on my cancer journey, the explanation did little to prepare me for the actuality of radiation therapy.
First up, a total body scan so they can calculate where the radiation is best targeted. A magnetic strip is placed across my incision scar and under my upper body a form is made with my arms up over my head. These 2 things ensure that they can properly calculate where the tumor was and that I’m in the exact same position for each treatment. Once all of this done, and the Radiation Oncologist is satisfied with my alignment and position, 3 small dots are tattooed on me to help with future alignment. The setup is now complete. It takes the Radiation Oncologist a few days to do whatever calculations he does. Once all this is done, we start the daily treatments. I walk out to the waiting area where Lee is waiting for me, of course. While it didn’t make much sense for him to be at my daily radiation treatments, he made dam sure he was there for the setup.
As with all my treatments, my drive is a 2 hour round trip from Bishop to Corpus. I had several people offer to drive me, but I just wanted to go alone. This way I could listen to whatever music I wanted and not feel the need to entertain anyone. Not that they would expect me to, I would just feel obligated to take them to lunch or something. And I didn’t want to make this thing some sort of event. I just wanted to go and get it over with.
I feel the need at this point to tell you how incredible the doctor, therapists, techs and staff were. From the first daily treatment everyone was kind, thoughtful, and supportive and even remembered my name. So here we go!
I walk in for my first of 33 daily radiation treatments. I’m directed to the dressing rooms where I don yet another hospital gown. (They are always ginormous on me and I end up wrapping them around myself.) I’m led into the treatment room and I am a bit taken a back. The radiation machine is nothing like the ct scan. It’s huge with a table right in front of it. My body form is in place on the table and I can see a monitor with my name at the top and all sorts of instructions for my therapy, all which looked like a different language. I lay down and am moved around until the tattooed dots on my body line up with lasers coming from the ceiling and 2 walls. Then the tech asks “What type of music do you like?” To which I answer “You probably don’t have what I like, so how about some classic rock?” Tech “Try me, I might surprise you.” Me “I’m a bit of a metal head.” Tech “I’ve gotta play list you’ll like and I’ll work on a new one for you this afternoon.” She starts the music, walks up to me on the table and says “Here wo go.” I reply “Let’s do this.” (An exchange we will repeat every single treatment) As she walks out of the room, the big metal doors close behind her and I’m left completely alone with Dr Feelgood by Motly Crue playing loudly.
Now the fun begins. The radiation machine cranks up and these plates start to move towards me. I’ve been instructed to stay completely still and stare at the ceiling, and that is just what I do. Laying there half naked staring straight up, during all of this, is the most vulnerable I’ve ever felt. I kept thinking “Why hasn’t this ever been portrayed?” I kept imagining a single shot filmed from the ceiling vantage point, as all the plate things spin around me. Then they stop and the actual treatment begins. Clicks and sounds that reminded me of Robby the Robot in Forbidden Planet. Each plate makes a different sound and then it’s over. The treatment itself only lasts 15 minutes and then you’re done. I put my clothes back on and I’m off, unless it’s my day to visit the Radiation Oncologist where more people look at my hooter and ask how I’m doing.
This is now my daily process. Take Lee to work, back home to take care of all the pets, try to get a few things done around the house then head to Corpus. It didn’t take long for the skin on said hooter to change color. It looked like a really odd tan. A few weeks into the process I got out of the shower and noticed my skin was peeling off, leaving bright pink and painful new skin. I can tell you this. When they told me there would be “some pealing” I was not prepared for the entire area to peel and be painful. I was assured that it was completely normal, given some cream and told to skip wearing a bra till the new skin felt better. This took about a week.
While all of this did become somewhat routine, one thing never changed. The feeling of vulnerability when left alone in the treatment room for those 15 minutes. I got pretty good at memorizing the treatment process. Noting each plate’s position and the noises they made. I could always tell when the treatment was almost over.
In the waiting area, outside the radiation room, there is a bell you ring after your final treatment. I read the poem, written on it, every single treatment. Finally, it was my turn to ring the bell! My last treatment day was here! As this last treatment ended I asked the tech “You’re gonna let me change clothes before I ring the bell, right?” His reply “Oh no, gotta keep the gown on.” As I walk down the ramp of the treatment room and the automatic doors open I hear applause. The entire staff and Radiation Oncologist are there clapping and cheering me on. I ring the bell, read the poem out loud and tear up a bit. We take pics, exchange pleasantries and hugs and I thank them all. I end it all by saying “I hope I don’t offend you here. You all have been so awesome during this process, but I seriously hope I never have to see any of you again.” They all laughed. I got the feeling it’s not the first time they’ve been told that.
On my drive home I got a notification on my phone from PayPal. My best friend since 8th grade had deposited money in our account to buy a celebratory round. So we hit our local hang out. Had a couple of beers and shots of Patron. A perfect ending.